Welcome to the Europe Chapter of the Vascular Birthmarks Foundation, VBF Europe!
Every year in the United States, 40,000 children are born with a vascular birthmark, 85% of which are in the head and neck area. Statistics show us that the incidence is the same in other countries. These birthmarks include:
No one knows why vascular birthmarks occur, but treatment guidelines are changing.
Josie Moore, VBF Europe's Manager
I am a mummy to a beautiful one year old boy called Zachary. He was born with a PWS stain on the left side of his face. He currently hadn't started treatment yet so our journey is only just beginning.
When Zachary was born in Inverness Scotland the doctors had not seen a PWS and I felt they were unsure how to treat this. I was given information from the Internet to read. I was shocked at the lack of awareness and support for people for the UK and Europe so I set up a Facebook support group for people with a PWS in UK and contacted Linda as I wanted to help bring more awareness of Vascular birthmarks over here.
- Great Ormond Street Hospital (GOSH)
Mary Glover : consultant paediatric dermatologist
Tel : 020 7405 9200 (ex 5601)
Email : firstname.lastname@example.org
Diagnosis and management of : vascular malformations, haemangiomas and laser treatment
Hilary Kennedy specialist nurse at the birthmark unit.
- Dr Syed associate specialist
Bristol: Royal hospital for sick children
Dr Lindsay Shaw : consultant paediatric dermatologist
Secretary Laura Carter : telephone 0117 3428808
this is a service based in the UK that helps with skin camouflage make up
More info on sturge weber syndrome
- Facebook support groups
Port wine stain PWS UK Vascular birthmark foundation
Alderhey Childrens Hospital Eaton Road
Beginning in January 2009, Dr Waner will be visiting Liverpool on a regular basis to see patients and perform sugeries, working in conjunction with Mr Liew Consultant plastic surgeon.
We have a large vascular birtmarks service including a multidisciplinary team and a large vascular service.
Patients may contact:
VBF Launches Day of Awareness - We need 25 families
Thank you for your support of VBF and the VBF International Day of Awareness.
Many of you have participated every year, since its inception on May 15, 2004. Families and individuals have hosted annual bake sales; garage sales; sold stickers, bears and bracelets; celebrated a birthday by hosting a party for VBF; were featured in newspaper and magazine articles and local television news programs – the list goes on…
There is really no proper way to thank each and every one of you for support, and for raising awareness of vascular birthmarks and the associated syndromes and conditions. VBF has one amazing support network.
As you know, the downturn in the US economy has had an impact on all aspects of life, including charitable giving. Donations to VBF are down 40 percent, while the free services VBF provides to patients and families have continued to increase. For this reason, your continued support of Day of Awareness is more vital than ever.
If you haven’t participated in VBF Day of Awareness, please join the VBF family of tradition and giving by hosting an event in your community: http://www.birthmark.org/awareness
It’s never too early to plan your event! Visit the VBF Day of Awareness website today to register your event, or for ideas on how you can help. Here are some helpful links to get you started:
Remember, May 15 is Day of Awareness, but events can be held any time during the year.
THANK YOU VBF FAMILIES AND FRIENDS!
Port Wine Stains: Clearance, Cure, and Recurrence
To Treat or Not to Treat
The following rebuttal by Dr. Stuart Nelson and Dr. Roy Geronemus was published in the New England Journal of Medicine in response to an article about the recurrence of Port Wine Stains (PWS) after pulsed dye laser treatment. At this year’s conference in Irvine, several physicians spoke about the pathology, progression and treatment of PWS. To summarize what was presented, after a PWS is treated using the pulsed dye laser, the vessels that are targeted by the laser will not necessarily come back, but rather new, deeper vessels will work their way up to the top of the skin thus making “some” stain appear. It is important to understand this because many people believe that PWS will always come back and, therefore, they should not have laser treatment. This is not true. While the laser does not “cure” the PWS, it offers the most hope for clearance, for keeping the skin from thickening and cobbling and for maintaining the best aesthetic outcome for the patient (comment by Linda Rozell-Shannon, President and Founder of the Vascular Birthmarks Foundation, 11/8/07).
Comments from Dr. Stuart Nelson and Dr. Roy Geronemus:
"We reviewed “Redarkening of Port-Wine Stains 10 Years after Pulsed-Dye-Laser Treatment” by Huikeshoven et al (NEJM 2007;356:1235-1240) with great interest and would offer our comments.
Interview with our Greek Surgeon Dr Tombris