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Determine Type of Birthmark
| Hemangiomas
only occurs in infants |
Port
Wine Stains
all ages |
Vascular
Malformations
all ages |
| Appears at or shortly after
birth |
Present at birth |
May be present at birth.
May appear suddenly at any age or may appear following illness
or trauma or during times of hormone changes |
| Grows rapidly for first 0-9
months. Most stop growing between 6-18 months |
Stays same until adulthood,
may thicken with age or become cobbled |
Most grow slowly from birth
or may onset suddenly and have slow or intermittent growth |
| Stops growing by 18 months,
but can take up to ten years to regress, often leaving a cosmetic
deformity |
Never go away, can stay the
same thickness or may thicken with age |
Never go away, usually grow
with individual. May have growth spurts with hormone changes or
from trauma or sickness. |
| May be raised, flat or both |
flat at birth, may slightly
thicken with age |
Mostly think and deep, may
be diffused or focal |
| Can be inside or outside
of body. Inside locations include brain, liver, intestines |
Mostly on skin but can be
on brain or behind eye |
Can be inside or outside
body, including on brain, liver, intestines, spine, stomach, or
organs |
| Can ulcerate or bleed |
Little blebs can bleed |
Can result in bleeds |
| Stay same when sick, feels
spongy |
Same when sick, but change
color with hot or cold |
Lymphatic swell/shrink with
respiratory illness. Venous fill when inverted, arterio-venous
have pulse when pressed |
| Responds to steroids |
Does not respond to steroids |
Malformations usually do
not respond to steroids except some lymphatic lesions |
| Some respond to laser |
Respond to laser |
Some respond to laser |
| Surgery can be indicated |
Surgery rarely indicated |
Surgery often indicated |
| Early intervention recommended
but not always necessary |
Early intervention recommended
to prevent thickening |
Early intervention recommended
to minimize extent of surgery |
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Parent's
Corner
Information for Parents
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Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness
|
What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission... every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
If you think your child has a hemangioma Click
Here...
If you think you or your child has a port wine stain Click
Here...
If you think you or your child has a venous malformation Click
Here...
What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission... every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
2003 Port Wine Stain Conference Videos and 2005 PWS Conference Audio CDs Available
2003 PWS Conference....4-PART VIDEO SET...now discounted from $69.99 to just
$29.99 PLUS $5.00 SHIPPING AND HANDLING This is an important addition to your
medical library and is appropriate for both physicians and those interested
in learning more about vascular birthmarks. Learn from the convenience and comfort
of your home or office. This set contains lectures from world-renowned medical
experts in the field of Vascular Birthmarks.
Please click here to place your order. (pdf order form) There are only a
few sets remaining. Hurry while supplies last.
2005 PWS Conference...3 CD Audio Series...is available for a donation of $49.99.
of which $30.00 is fully tax deductible. Listen to the incredible presentations
by world experts in the field of PWS, Sturge-Weber-Syndrome and Klippel-Trenaunay
Syndrome as they discuss the latest research and treatment information. This
presentation is the most current information you will find on this subject.
There is a limited supply. This set will be sent to you by UPS within two weeks.
To buy this set, click
here. (pdf order form)
Publications for Parents:
- VBF Vascular Birthmarks Brochure - Download and Print -
A comprehensive brochure describing all vascular birthmark types, syndromes
and treatment options. To
print, click here (you will need the Acrobat
Reader to view and print this document).
- Doctor Visit Survey Have you been seen by a doctor to assess
a vascular birthmark? Please click here
and complete our survey. This survey will be used to provide feedback to the
doctors about the information and treatment they provide to families affected
by a vascular birthmark. Complete your survey and mail to Corinne Barinaga,
VBF Director of Information Services, 17309 NE 29th St., Vancourver, WA 98682.
- Before you visit, email, or speak to a birthmark specialist, be sure to
read our Checklist for Parents!
- Port Wine Stain Leaflet (pdf) (Word)
- Hemangioma Leaflet (pdf) (Word)
- Psychosocial and Emotional
Issues for Individuals with a Port Wine Stain
- Simple things you can do to
manage KTS (Dr. Delfanian and Linda Shannon)
You will need Adobe's Acrobat Reader to open and print the pdf documents. If
you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.
Parents' Stories
Do you have any suggestions to improve the services we offer to our VBF families?
Send us your comments and suggestions!
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