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Ruth’s story on how she deals with staring strangers her son Sam
has a Nasal Tip Haemangioma
I have gone through different stages when confronted with people
who stare. Sometimes, when I am feeling particularly benevolent,
I will smile back. Other times, if they are staring in an aggressive
way, I will stare back at them until they look away. This has
proved to be quite tiring though, as it's tough to keep up with everyone
looking at us. I'm beginning to realise though, that I'm
much happier if I just try and ignore them.
The only place that people actually speak to me about Sam's H is in
our local supermarket (normally around the bread aisle!). You
can tell from the way that they ask whether they are kind, or just
nosy. If I think they're being rude, I'll say " it's a tumour",
(which it is, only a benign kind) - that normally shuts them up.
Otherwise, I will try to explain. I do feel very proud of
Sam and I think that in some way, I do have a 'duty' to try and inform
people about Haemangiomas.
Sometimes, I get into nice conversations with people when they tell
me about their niece or nephew, or grandchild etc. who also had an H
of some kind.
The staring is getting easier though. When he was a newborn, strangers
used to peer into the pram an awful lot more. Now they don't so
much. He has such a lovely, cheerful face, and he is usually shouting
at the top of his voice, I can't blame anyone for looking anymore!
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Parent's
Corner
Information for Parents
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Don't Forget!
Every Day is a Day of Awareness for VBF!
Visit the VBF International Day of Awareness Website:
birthmark.org/awareness
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What if the VBF earned a penny every time you searched the Internet? Now it
can! GoodSearch.com is a new Yahoo-powered search engine, with a unique social
mission. Every time you use GoodSearch, money is generated to support the
mission of VBF. Just go to www.goodsearch.com
and be sure to enter the Vascular Birthmarks Foundation as
the charity you want to support. The more people who use this site, the more
money we'll earn so please spread the word! Go
to http://www.goodsearch.com
If you think your child has a hemangioma Click
Here.
If you think you or your child has a port wine stain Click
Here.
If you think you or your child has a venous malformation Click
Here.
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Publications for Parents:
- VBF Vascular Birthmarks Brochure - Download and Print -
A comprehensive brochure describing all vascular birthmark types, syndromes
and treatment options. To
print, click here (you will need the Acrobat
Reader to view and print this document).
- Doctor Visit Survey Have you been seen by a doctor to assess
a vascular birthmark? Please click here
and complete our survey. This survey will be used to provide feedback to the
doctors about the information and treatment they provide to families affected
by a vascular birthmark. Complete your survey and mail to Corinne Barinaga, c/o VBF Director of Information Services, PO Box 106, Latham, NY 12110.
- Before you visit, email, or speak to a birthmark specialist, be sure to
read our Checklist for Parents!
- Dr. Rosen's Vascular Birthmark Information
for Parents
- Simple things you can do to manage KTS (Dr.
Delfanian and Linda Shannon)
You will need Adobe's Acrobat Reader to open and print the pdf documents. If
you do not already have it installed, you can find it here.
You will need Microsoft's Word to open and print the Word Documents.
RECRUITING SUBJECTS FOR A RESEARCH STUDY ON FACIAL BIRTHMARKS
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